Lilia is Home!

I am so sorry i forgot to update that she was home. I even Forgot to call my mom and tell her..oops. Things have been crazy getting ready for us to go away this weekend.

So Lilia was discharged on thursday and we got back late thursday night. She was finally allowed food by mouth thursday morning, and she had the bigges smile when she was finally allowed a freezer.

i couldnt talk them into pulling the J tube out, even though we are having issues with it getting infected but their reasoning makes sense and it'll be pulled in about 3-4 weeks. Hopefully they can do that in London so we dont have to go back to toronto for that.

Lilia was due to go back to toronto Jan 27 for her yearly holter, GFR and an echo. However since we were just haning around the hospital waiting for her feeds to slowly go up, the did them on Wed and thursday instead.

The Holter is basically a 24 hour EKG, the GFR is a test to check Kidney function as the meds transplant kids are on can damage the kidneys. Its especially important for Lilia becuase post transplant she had pretty major kidney damage, and although its been normal for 2 years now it something we have to keep an eye on. The test is a bit of a pain though having to have an IV put in (so she had one in each hand that day!) and she has to lay fairly still for 20 mins afrter they inject the radation in to take the pics..but she watched Dora the whole time and did really well. It'll be a while before we get the results back though.

So hopefully the next time we go back to toronto is for her ECHO/DSE which is March 24.

Thanks everyone for thinking of Lilia during the G tube stuff..shes doing very well and it just glad to be home! I'll post some pics when we get back from our weekend away.