Monday, June 17, 2013

Transplant psycologist..

so last week we went to t.o to see the transplant pyscogolist. we went over the report from her school, gave premission to talk to her teachers, etc...we told Dr.gold about how we were wondering if she had ADHD, and also about brain damage. well as it turns out lilia had some testing done at 2 weeks and up untill shortly after the transplant. they suspected that she had a grade 1 brain bleed. turns out it could never be confirmed or denied. now my sources tell me that if it was bad they never would of put her on ECMO becuase of the blood thinners...so i feel a bit better. but i do wish they would of mentioned this some time in the last 7 years. especially since were they suspect the bleed is in the language and memory part of the brain. it would explian a lot! we are hoping her cardiolgist will ok an MRI to check this and other areas. see if this should even be a concern or not. if not we will look into other things. she defeintly agree with us that despite being deaf and all the medcial stuff she went throguh she is still behind kids who have similar issues. i just want to get her help, i hate seeing her act out and struggle.