Friday, June 18, 2010

So we were in toronto all day yesterday (traffic was awful esepcially on the way there)

well the lower part is still collapsed. the uppser part has some air entry now, which is a good sign.

they have basically deicded that while she shows no symptoms..can run around fine, isn't sick, etc.. then they arent going to do anything.

most likly in the future she will lose the lung, but they are going to keep it for as long as possible.

so right now I am just gonna try and let go, and just not worry about it.

Tuesday, June 1, 2010

We're coming home!!

Lilia's has been off oxygen for most of the day today. she only desats down to the low 80's when doing ehr physio and bounes back up to low to mid 90's after..so thats good enough for her to come home yay! right now we are jsut waiting on an echo then we can go.

We talked to the chest specialists this morning. they want to try and see if we can bring that lung back up (it is still collpased...apparently she functions well with a collpased lung) so heavy oral antibioticsm a lot of chest pysio (4 times a day) and then when we come back for transplant clinic (on the 17th) we will do another x ray. if its not any better then we will plan the next step. Which is most likly to remove the lung.