Lilia's story..part 1

3 years ago on the 21st.....Lilia went a long time at night without eating..she was very stuffy sounding and we kept putting Saline in her nose to clear the mucus..we even called telehealth and they told us it was muscus from her birth (only 9 days earlier) and she would be fine...then she went 6 hours without eating. She would keep latching on..take a suck and then break away crying, Screaming actually. I thought soemthing has got to be wrong with her latch and we decided to take her to the Sears breastfeeding drop in clinic to get help. There Lilia wouldnt even wake up enough to try and latch on, the person there (nurse??) said it might be her jaundice, might be high and she would probably need to be put under the lights. Said to take her the the ER..Brant had to work then, but i siad I didnt want to wait.Auroa fell asleep in the car on the way to the ER, so I told Brant to stay in the car with her and I would take Lilia in..i was sure it wouldnt be too bad and we would be out soon (we over reacted to aurora's jaundice when she was born...so i figured we would be sent home)we went into triage and the nurse did Lilia's blood pressure, stats, temp, etc.. and she never even flinched..by the time the nurse was done these things Lilia was blue...they rushed her to the back right awya and sent me to do the paper work.I was in tears..I didnt know what was going on..a few mins later they came and got me and brought to the hall outside the room that Lilia was being worked on in..i sat there and cried..then they let me go in..Lilia was intubated and had started to turn pink again, she had an iv and a bunch of other wires..they told me they didnt know what was wrong with her, but that she couldnt breathe on her own, and needed to be admitted to the NICU...I follwed them up there.There they did a chest x ray..and the doctor told me her lungs were filled with fluid and her heart was enlarged..they called a tech to do an Echo,,i helped to hold her still for it..they didnt tell me any results. Only that they wernet sure what was wrong with her..that it might be pnemonia, and that they were going to send her to London (we were living in windsor at the time) becuase it was so clsoe to Christmas that it would be faster (we were also waiting on results on wether or not she had turners syndrome from london..and they wanted these results asap) I didnt care as all my family lived in London and so I kenw my parents would take Aurora so that me and brant could be togehter with Lilia.I walked out of the hospital alone, carrying an empty carseat and bawling my eyes out (one of the saddest moments in my life), Brant and Aurora found me a few mins later..they had been trying to get back in time to see lilia off (brant had been in and out of the NICU with Aurora the whole time) they had seen her ion the hall and made them stop so they could give her a kiss.We went back to our place and packed as quickly as possible, I posted on M2M asking for prayers..and left. We went to my parents first and dropped Aurora off..then went to the childrens hospital PICU in London..by the time we got there the docotrs knew what was wrogn with her.They sat us in a room (we hadnt even seen her yet) and explained that Lilia was in very roguh shape when she got there..she almost didnt make the ambulance ride..once they stablized her again they did an echo and found that she had 2 Congential heart defects, CoA and multple VSD's, She needed surgery to surivive..however the good news was that her outlook after the surgery looked very good! She had a very high percentage of being fine.So they called Sick kids in toronto (as London does not do heart surgeres on children anymore) and said they would send her up in the morning (it was about midnight now) but sic kids did not want to wait, so theys ent their own team to come and get her. they couldnt do it by Air as the weather was too bad for flying.About 3 am they came...and took her away and me and brant followed soon after.We got lsot and it took forever to find Sick kids..and i was freaking out becuase I jsut wanted to be with my baby! Finally we got there, got a tour and were told that she again was in very rough shape after the trip, they were concentrating on stablizing her and then the next day (23) she would have the open heart surgery to repair the defects.