Lilia's Story-Part 2

So Dec 23 2005 Lilia had open heart surgery to repair her heart defects. It was a long wait and we were a ball of nerves. She came back with her chest open (which we were warned might happen) they hoped that in a few days the swelling would down enough to close. Her chest jsut had clear tape type stuff over it so they showed us..it is the weirdest thing to see your daughters heart beating in her chest, I had to sit down.
She was heavily sedated as well as muscle relaxed due to the open chest.

Christmas day was rough, we went back on Christmas eve to be with Aurora at my parents house, brant had gone back to our house in windsor first had brought the gifts to my parents.

This was Aurora's 2nd Christmas and as much as we wanted to be with Lilia we couldnt be in 2 places at once. Aurora was glad we were there, but our hearts were just not into it.

We went back to toronto after dinner and spent the rest of christmas day with Lilia..Santa had come to visit her, we also left her stocking on her "crib", she actualyl got a fair amount of stuff from the santa at sick kids. We were pretty impressed.

After the holidays were done, the doctors decided that Lilia was ready to try and close. Everything went well, untill they were getting ready to leave..Lilia coded and they had to open her again very quickyl and use the internal paddles to revive her.
They decided to wait a little while longer befre trying again.

Only a few days after this mess, Lilia got worse. Her nurse for the evening came on and noticed that lilia didnt look right. We were just walking in the room (you cant be in there for shift change due to privacy reasons) when they "pushed" us back into the hall..all of a sudden doctors were swarming her bedside..and they led us back to the waiting room. We heard the overhead call for emergency ECMO team to her room...
Shortly after a doctor came and toldus that Lilia had gone into septic shock, her blood pressure was too low and they had to put her on the ultimate of life support..the heart and lung by pass machine. this machine does all the work for the ehart and lungs. they thought with rest her heart would recover and she would get better.