ct results and other news....

shes doing fine right now.....but she had a ct scan the other week and it showed her left lung is in bad shape. the bottom of it is collapsed and the upper part is so full of mucus that no air is getthing through. waiting to hear back from respirtory and ent...but they are discusing on wether to do nothing sat this point...or remove the lung. its a great source of infection (she was hsopiailized in june with a bad pnemonia and she gets pnemonia all the time) also, we're not telling the kids this, but during heart transpant clinic last week we were told that lilia most likly will not qualify for a 2nd heart transplant. typically a heart lasts like 10-15 years ish... and she is almost 8 years old. our hope is that its lasts a very long time and that by the time she needs a 2nd one things will have changed and she will be a canadiate. but it was still devastating to hear. waiting on an MRI for her, and still working on geting a dx about her behavioural issues/ we know for sure its not autism...but probably adhd and maybe brain damage or other learning dissabilites or mental health issues. its a long road