So since the biopsy Lilia hasnt been feeling great. Sleeping a lot, coughing a lot. They did say after the biopsy there was a lot of mucus in her lungs, ther suctioned a lot out but told us to watch out for pnemonia..well it got her.
Friday she started with fevers, her lips tunred blue and she was shaking..she slept alomost the whole day which is very unlike her. We were going to take her in then, however we thought maybe it was just the infection from the J tube and decided to wait and take her to the Clinic sat morning..she was already asleep friday and i hate waking her to spend the night in the ER..especially if she doesnt need to.
Saturday she still had fevers and sleeping, plus the coughing so I took her in. Her sats were only 86/87 (she normally sats normally 98-100) they started her on O2 and put her in a priavte room in the ER (they always do as shes immune compermised..we also never wait in the waiting room which is nice) so after chest x rays they said yes she does have pnemonia in her elft long, it is pretty bad actually. they were talking about putting her in the PICU instead of on the 7th floor. However since she was looking a lot better (less pale, and sitting up and playing) with the O2 they decided to admit her to the floor. Which is great...PICU is not a place you want to need to be..shes never been back there since she was a little baby.
Well because of staffing issues she spent the whole night in the ER..hopefully she'll have a bed upstairs this morning when there are more nurses. She didnt fall back asleep untill midnight, but brant spent the night with her (i spent the first 14 horus with her) and we'll be switching back and forth.
I'll update on here when I can.
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