July update...

Still waiting on the team to get back to us with the date for her MRI....i am very inpatiently waiting though! poor lilia has had a bit of a rough summer, the end of june she was hospitlized for a pretty bad pnemonia. lukily becuase she didnt need oxygen we were able to go home the next day on iv antibiotics and for 3 days before she lost it, a nurse came and gave those to her. then she went on oral antibiotics for 10 days,...and all was good. she had a ct scan of her lungs, and chest clinic last week. nothing big to report there yet, waiting for them to call us with results of the ct scan. chest said she was fine although she had such a bad sore throat she was always in tears. got home and took her to the ER and she had a bad case of strep throat. so more antibiotics. shes still on the meds, but at least now she is able to eat and drink again! i was worried she was going to be dehydrated. she has tranplsnt clinic august 8th as well as an echo....then nove 22 she will have her big procudure done. it was suppose to be in july but because of the pnemonia we had to rebook it.