So I forgot to mention this. When Lilia was in the ER they did a drug level on one of her anti rejection meds. Turns out that it was 100!!! To give you an idea of how high that is, its suppose to be between 8-10. So for the last few days they have had to hold the med and wait for her drug levels to come down. which means being poked every day. Since its policy to no longer take blood from the IV, she gets finger poked every morning. Shes not happy about that at all.
it probabaly happened becuase she she went so long without food in her stomach, was probabaly a bit dehydrated, etc.... lukily they caught it though.
"just when the caterpillar thought the world was over it became a butterfly..." and this is her story...
Monday, February 21, 2011
Sunday, February 20, 2011
at least a week
So apparently the bacteria in her blood that the culture showed means she needs at least a week of iv antibiotics. So at the earliest we will be out of the hospital is Thursday.
Not too impressed with this news.
on a happier note, Lilia kept her last feed down!! so for now we are just going to continue to run it slower and hope that helps.
Not too impressed with this news.
on a happier note, Lilia kept her last feed down!! so for now we are just going to continue to run it slower and hope that helps.
Saturday, February 19, 2011
Admitted
So you all know lilia likes to cause havoc on holidays.....well she was admitted into hospital last thursday and will probabaly still be there on family day.
it all started with the stomach bug we all had, however ours lasted 24 hours and Lilia's lasted 10 days and counting....finally on the 10th day we took her to ped (again we had taken her in a week ago as well) who took one look at her and told us to take her to the hosptial. She has lost 2-3 lbs, was now coughing something fierce, spiking fevers off and on, was very pale.
So we took her to the ER and her sats were 92...not too bad, but not as good as normal. the chest x ray (which she is an old pro at) showed pnemonia on both the left and the right lung. So she was admitted.
Lukily she doesnt need 02, however she does have an IV in for the IV antibiotics. which right now is a broad spectrum one.
they did do blood cultures (which is growing something) and a nose swab (which showed she has a cold...so shes stuck in isolation) but we wont be allowed out untill they know what the blood culture is growing. So that sucks. Shes very cranky being stuck there, even starfall.com is starting to bore her.
they did start her feeds back up, and she made it through 3 of them without puking. but then she puked up the 4th one. So they ran her 8pm feed over 2 hours (instead of 1) and we are keeping our fingers crossed. If she pukes again they will have to call the doctors.
anyways so now that we have net in the room, I will try and keep her blog up to date on whats going on. which hopefully wont be too much more.
it all started with the stomach bug we all had, however ours lasted 24 hours and Lilia's lasted 10 days and counting....finally on the 10th day we took her to ped (again we had taken her in a week ago as well) who took one look at her and told us to take her to the hosptial. She has lost 2-3 lbs, was now coughing something fierce, spiking fevers off and on, was very pale.
So we took her to the ER and her sats were 92...not too bad, but not as good as normal. the chest x ray (which she is an old pro at) showed pnemonia on both the left and the right lung. So she was admitted.
Lukily she doesnt need 02, however she does have an IV in for the IV antibiotics. which right now is a broad spectrum one.
they did do blood cultures (which is growing something) and a nose swab (which showed she has a cold...so shes stuck in isolation) but we wont be allowed out untill they know what the blood culture is growing. So that sucks. Shes very cranky being stuck there, even starfall.com is starting to bore her.
they did start her feeds back up, and she made it through 3 of them without puking. but then she puked up the 4th one. So they ran her 8pm feed over 2 hours (instead of 1) and we are keeping our fingers crossed. If she pukes again they will have to call the doctors.
anyways so now that we have net in the room, I will try and keep her blog up to date on whats going on. which hopefully wont be too much more.
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